I want her to be involved because we have started a rather challenging diet in an attempt to heal her little belly. The doctors call it Cyclic Vomiting Syndrome (CVS) - every four weeks or so she spends 4-5 days hanging over a bucket. In my search for answers, I had a lengthy discussion with a friend whose daughter experienced the same symptoms and whose doctor offered the same diagnosis. Like me, she wasn't satisfied when the doctor said, "There's not much you can do but get through each episode." So she sought answers and finally found them through another doctor who told her that her daughter had an overgrowth of yeast (sometimes called Candida) and needed to be on a gluten and sugar-free diet. My friend's daughter has been CVS-free for 8 years now.
I explained it to Audrey this way:
Your tummy has good guys and bad guys in it. The good guys help you fight disease and stay healthy. They are also supposed to stay numerous enough to keep the bad guys from taking over.
The bad guys like to eat sugar. So when you eat lots of sugar, the bad guys start to grow and multiply and TAKE OVER! (And you know that we - you and me - have a sweet tooth, right? So even though I homemake most treats, they're still sugary.)
(The dots are sugar. Duh. We're getting really scientific here.)
Once the bad guys take over, you start to feel bad. Different people feel bad in different ways. For you, your body gets mad about all the bad guys, and you throw up a lot.
So what we have to do is stop feeding the bad guys. In addition, we need to take what are called probiotics because those will help the good guys grow and multiply and then THEY can take over!
And so that is how we came to the conclusion that Audrey needs to be on a gluten and sugar-free diet. And really, I've adopted more of a primal/paleo approach because I think all of the starches and weird flours of the gluten-free diet are as bad or worse than a standard diet.
I hope and pray this is the answer. "Mainstream" doctors will not admit this is a problem. They will tell you not to believe all of the hocus pocus a naturopath will tell you. Well, a week of vomiting every few weeks is no way to live, and all the mainstream doctor is telling me is that we have to "get through each episode", so I have no choice but to listen to a naturopath (or, rather, a friend who did listen to an alternative medicine doctor). I did contact a lady on a CVS forum who sent me a list of specialists in the country. Though there are only a handful, there is one in Boston and one in New York, so it would be feasible to make an appointment with them. However, I was a bit discouraged because the lady told me that, with medication, her grandson went from having episodes every 4-6 weeks to only having them every 4-6 months. She called that a miracle. That's no miracle to me; that's still a week of vomiting two or three times a year.